The Nia-Tesa Blackett Foundation

General information

Out of Tragedy springs Hope…

The Nia-Tesa Blackett Foundation is named in memory of our precious "angel" and daughter NIA* who tragically passed away after developing a GANGLIOGLIOMA, a rare brain tumor.

Out of those tragic circumstances, we bring hope to others.Our efforts are now firmly focused on the future and in honoring NIA's memory. Our vision is that robust research into these rare brain tumors and cutting edge medical practice will achieve breakthroughs in both clinical and complimentary medicine to allow practitioners to move beyond the current conventional methodologies governing the medical treatment of these conditions.

As NIA's parents, we are the founding trustees of this charitable Foundation and we will serve in the roles of Chairman/ Executive Director and President/ Director of Programs; maintaining a hands on role in the future direction of the Trust. We bring to the table our own unique experiences, which we are willing to share, in the hope that others will benefit from the knowledge we have gained first-hand.

Through stimulating discussion, influencing policy and developing medical practice at government, private and 3rd sector levels, the Foundation aims to address gaps in early diagnosis, treatment and information flow surrounding this disease. Our target audiences include academia, the medical professionals, institutional donors and others who are experiencing or have experienced this on a personal as well as on a family level.

Through targeting academia, we hope to influence the new generation of medical practitioners, as well as challenging the orthodox mindset of our current medical professionals to new and exciting clinical practices.

The foundation will operate as an international private charitable foundation based in the United Kingdom with offices in the USA, Canada & Barbados. We will seek out links with other similar foundations and organizations internationally through MOU's.

We believe strongly that social debate will bring about a change in the attitude of most people and ultimately the policy makers will need to look at how environmental factors as well as unbridled inorganic technology may be a contributing source to ill-health.

Clinical programs will initially be sponsored in the UK and Barbados. However, international expansion will be created over time as local partners and stakeholders are found who will run the "vision" of NTBF.

No family should have to lose a child or a loved one prematurely due to any shortfall. We must become the "change" we want to see in our troubled world!