Dercums Disease And Rare Disease Foundation

General information

We are a new foundation, we are here to fight for Dercums Disease and Rare diseases
We are about getting research and information to the people over here that are in the dark about these terrible Diseases. We don't want anyone going through these Horrific stories you are going to hear, Dercums has a lot of facets to it, that is why people get Misdiagnosed, We are not just about Dercums we are here for people suffering with all Rear Diseases that are Suffering in Silence.

We want to be your Voice, we are here to make sure all our GPs have on there Computers Research about these Illnesses we want to fight for Information for all of you, instead of us having to go over to USA to have all the Special treatment ...WE WANT them here.

We are not a Medical site or a political site.....but if we no you have a problem we are going to find out the best way we can work this out....we are not going
to put loads of Medical Information to Confused anyone....but once you are on board with us we are going to make dame sure you know all you want to know.

Our foundation will be your Voice.....we are going to find Humour in things that Normally would make you cry, you can follow the lives and funny story's on hear, we will be coming up with really good fun raising events, lots of things that will be fun for all of your family's to do....if anyone helps us in anyway it will be put on our web sit and people will see what you have done....and where and what it has gone towards.

Any money made will go Direct to foundation it's your foundation .....you will have Regular up dates as to what is going on....we have a Wonderful team of Trustees we are all Volunteers...we will not Waste any Money it has to go towards your Foundation for us to fight to get all the help we can get....that means the more we get for free we will use it wisely, There will be all different pages that will help you with Food, Exercise, Relaxation and a Professional Spiritualist. The groups that Join us will have Information for you and will have a front Person that you will get very Familiar with, so you can chat to and find out things you want to know....also we have said to them our AIM is to fight the post code lottery ....and the fact that they have got the Medicine you need but are holding it back....so if this happens to you you just have to let us know and we will look in to it a fight for you....

The head one in USA Karen Herbst , has already said she wants to come over in June for a talk she is in Sweden around that time so we need money to sort things out over here for a Seminar for her and all the Professors in genetics to Attend xxx

And if you have a Social Problems and you are ill or your children are ill and you need any help we will help you the best way we can, we will fight like we are one big family, for that's what we are one big family DDRD we say it with great Passion for we Believe it and can see it